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National Institutes of Health

How To Transform Health Sciences With Better Data Management

Data transformation templates, machine learning, and proprietary software have enhanced research into Parkinson’s at NIH.

Publicis Sapient is using digital transformation to help the National Institutes of Health (NIH) implement centralized research protocols and data repositories to advance medical breakthroughs. By coordinating stakeholders and applying advanced techniques, they have increased funded projects by 300%—expediting critical medical advancements.

The challenge

The Imperative for Change

More than 6 million people live with Parkinson’s disease worldwide. However, researchers fighting the illness have been hindered by limited funding, technical resources, and access to large-scale data sets. Traditional, partitioned data capture methods and the limited availability of super computers powerful enough for gene sequencing and analysis have wasted significant time and created duplication of effort.

The solution

The Transformative Solution

Hoping to expedite the development of new medical treatments by jointly identifying and validating new disease therapies, the National Institutes of Neurological Disorders and Stroke (NINDS) Parkinson's Disease Biomarker Program (PDBP) partnered with Publicis Sapient. The aim was to establish new ways of documenting, sharing, and leveraging data. Together, they are using existing NIH program resources, modular new protocols, and transformative industry change management to develop an exponentially more productive global research collaborative.

Through the use of data transformation templates, machine learning, and proprietary software, Publicis Sapient is helping the NINDS PDBP improve the way the research community is capturing, sharing, and leveraging data across the research community:

  • Optimizing data acquisition standards
  • Centralizing biospecimens for more in-depth, targeted analysis
  • Expanding identifier capabilities
  • Increasing industry collaboration and coordination
  • Building a more thorough shared data set for enterprise advancement

This collaborative and long-standing partnership has also led to the recent design and delivery of the AMP PD public-facing website and user management resource — a critical new tool that now ensures proper outreach and user acquisition for the Accelerating Medicines Partnership Parkinson's disease (AMP PD) program.

 

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Through this initiative, IT Infrastructure advancements, new data access, and changing researcher practices have allowed the PDBP program to significantly improve its approach to standardizing data capture protocols.

By providing more reliable and comprehensive de-identified data sets to other researchers, Publicis Sapient played a role in helping the National Institutes of Health become more efficient with large-scale data analysis and set new standards for medical research best practices.

 

The Business Impact

This data output has resulted in comprehensive clinical profiles for 1,599 qualifying study subjects, providing 1,469 whole genome-sequencing samples and 3,538 processed RNA-sequence samples.

Sample

PDBP has provided the medical community a large, harmonized Parkinson’s disease data set to perform advanced sequencing and analysis. And the client’s work is now expanding into a new research focusing on related disease data.

 

Kristine Treece
Kristine Treece
Programme Management